information and views expressed on this site are those of three
non-medical people, all of whom have Cold Agglutinin Disease (CAD), a type
of Autoimmune Hemolytic Anemia. At times we have used medical
have tried to be as accurate as we can in presenting this information.
Always check with your doctor before making any medical decisions since
he/she best knows your case.
Due to the
deep sense of isolation each of us experienced upon diagnosis, we felt
that a site would be helpful where Cold Agglutinin Disease sufferers (we
are going to call ourselves CADdys) could obtain information, and "talk"
to each other. It certainly would have been beneficial to us, especially
during the early years while we adjusted our lives to the new "Rules" we
now live by.
Cold Agglutinin Disease
CAD is also known by a number of other names:
Cold Agglutinin Autoimmune Hemolytic Anemia (CAIHA)
Cold Haemagglutinin Disease (CHD)
Coombs Positive Hemolytic Anemia
Primary Chronic Cold Agglutinin Disease
Cold-Antibody Disease, Idiopathic Autoimmmune Hemolytic Anemia, Immune-mediatd
Hemolytic Anemia (IMHA)
You can use the
various search engines such as Google.com, Yahoo.com,
Ask.com to access these names and find a wealth of information.
The statistics on the prevalence of Cold Agglutinin
Disease are not precise, however, it is believed that it affects about 1
in 60,000 people, according to the Norway study of 86 CAD patients.
Actually you are a
millionaire! The rate of incidence is about 1 in one-million per year.
So in a country of 8 million, you can expect to get 8 new cases of CAD
each year.......look for them when you next visit your Doctor......
some suggestions on how to look after
yourself, give you more details about Cold Agglutinin Disease, provide a
list of other CADdys, show some of our "stories", and give you news about
changes occurring in the treatment of CAD. Also, take a look at our Links page for additional sites which you may find of interest.
has a group named CADdy Chatter which you are welcome to join.
you enjoy reading the
material, and take heart from the fact that there are others trying to
cope with similar issues.
the Contact Us page. We would really like to hear from you!