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25jan12 Update
added to Chris Morgan's story
29nov11 Jena Kerns added
to CADdys
8nov11 Beverley
Walker added to CADdys and Stories
10oct11 Elsa
Woodaman added to CADdys and Stories
7oct11 Jean Eames added to
CADdys
27sep11 Our
condolences go to Connie Vianese on the loss of
husband Joe Vianese, from Orlando.
21sep11 Dee R. added to CADdys
7aug11 Katherine
Bass added to CADdys
24jul11 Paul
Schindler added to CADdys and Stories
20jun11 Mr Leslie Chrol-Frolowicz
added to CAddys
10jun11 We have
been advised that Patricia Bradley died of complications, aged 87, on 31
May 2011.
She had suffered from CAD for over 20 years. Our deepest sympathy goes to
her husband Alan.
15may11 Penny James added
to CADdys
6may11 Laraine
Aitken added to CADdys and Stories
4apr11
Darlene Strand added to CADdys and Stories
4mar11 Noel daCosta
added to CADdys and Stories
2feb11 Laurie
Riffle has changed her email address to laurie@rrcolor.com 27jan11 Danielle Edwards
added to CADdys and Stories 1nov10 Barb
Simon added to CADdys and Stories 18oct10
Øivind Bjørkås added to CADdys 18oct10 Barb
Johnson has reverted to her maiden name, Barbara Plavecsky
| 14oct10 |
Marta Loppery (Canary Islands) is wanting to
correspond with a CADdy who can speak Spanish. Marta is on our
CADdys page. |
12oct10
Cathy Burgett added to CADdys 26sep10 Roger Hudson
added to CADdys
| 2sep10 |
If you have had an adverse
reaction to rituximab while having an infusion, a HAMA test may help
you. See the Rituximab page for information. |
9aug10 Our Links page has
been updated to remove outdated links, and add new ones. 9aug10 Keith Woods added to
CADdys
4aug10 Published 2010 - Newly completed
study by Dr Sigbjorn
Berentsen et al from Norway.
| |
"High response rate and durable remissions following fludarabine and rituximab combination
therapy for chronic cold agglutinin
disease." |
| |
This report can be downloaded from our Links page.
Also see our comments on the Treatment Options page. |
10jul10
Laurie Riffle has added good news to her story 21jun10 Jane
Doe added to CADdys and Stories 11may10 Dorothy Ingerson added to CADdys
and Stories
11may10 Patricia Bradley added to CADdys 9may10 Marta Loppery added
to CADdys and Stories 9may10 Betty Usdan has
updated her story 8may10 Annegret Winsor added to CADdys and
Stories 8may10 Chris Morgan's story
updated 8may10 James Rockwell added to CADdys
8may10 Evelyn Korkmaz added to CADdys 5apr10
Kevin Sidle has an 8 year old daughter with CAD, and would like to contact
anyone else who has a child with CAD. Contact Kevin at
ksidle1@jhmi.edu 1apr10
Chris Morgan added to CADdys and Stories 16mar10 Madeline Krenek
added to CADdys 18feb10 Dennis
Fotopoulos added to CADdys and Stories 11feb10 Judy Filipich added to CADdys
and Stories
11feb10 Graeme Hore has added an update to his story 23jan10 Barbara & Jay
Jablonski added to CADdys and Stories 11jan10 Joni Gerking added to CADdys 30dec09 Juhi Nelson added to CADdys 22dec09 Donald Bowman added
to CADdys and Stories 8dec09 Barbara Sparks added
to CADdys and Stories 2dec09
Lesley Clark added to CADdys 20nov09
We've been requested to post the following clinical trial but WE DO NOT
ENDORSE THE USE OF THIS DRUG FOR CAD.
For Cold Agglutinin Disease patients in Germany, Dr. Alexander Roth, Dept
of Hematology, University Hospital Essen, Germany is planning a clinical
trial, (DECADE Trial), starting the beginning of 2010 in centers in
Germany using eculizumab for the treatment of CAD. Contact: alexander.roeth@uk-essen.de 5nov09
Judith Desfosses added to CADdys 14sep09 Joanne Scott added
to CADdys 7aug09 Ruth Ann Ryan added to CADdys and
Stories 6aug09 Peter DeNardis added to CADdys 4aug09 Lael Van Riper added to CADdys
and Stories 24jul09 Some CADdys have Waldenstrőm
Macroglobulinemia, a malignant disorder of the blood closely related to
Lymphoma, so we have added two valuable links. We have been linked
on their sites as well.
Bing Center for Waldenstrom's Research, Dana Farber/Harvard
Cancer Center
http://www.wmprogram.org/Links/Default.asp
Waldenstrom's Macroglobulinemia
http://www.stevenptreon.com/links.htm 27jun09 We have been advised that John
Harms has died. His story has an addition. 16Jun09 Mary Puckett added to CADdys 31Mar09 Menna
Edwards added to CADdys 11Mar09 Valerie Debaix added to
CADdys and Stories 2Feb09 Jan Rudsenske
added to CADdys 26Jan09 Information from a CADdy has been
added to the Cold Agglutinin Disease page...it is currently the second to
last paragraph. 26Jan09 Jose Silva added to
CADdys 22Jan09 Links to two
recent articles have been added to the links page.
Rituximab-How it Works and Why Resistance Occurs
New Anti-CD20 Monoclonal Antibodies 15Jan09
Hilary G. Derby added to CADdys 1Jan09 Judith Hubbard added to
Stories & CADdys 18Dec08 Mary Stearn added to CADdys 5Dec08 Roberta Franklin added to Stories 3Dec08 Pamela Bedford added to Stories & CADdys 5Nov08 Steve Hearne added to Stories & CADdys
5Nov08 Joe Sergio added to Stories & CADdys
29Oct08 Roberta Franklin added to Stories & CADdys 10Oct08 June Davidson added
to CADdys 3Sep08 Barbara Southall added to Stories
& CADdys
23Aug08 Rosa Raveneau added to
CADdys
25Jul08 Mary Lou
Lydecker added to Stories & CADdys
3Jun08 Rod
Coomer added to Stories & CADdys
3May08 Mogamat Cassiem
Samaai added to CADdys
20Apr08 Carol Vanchina added to
CADdys
21Mar08 Barbara Johnson
added to Stories
11Mar08 Roberta Franklin
added to CADdys
4Mar08 Steve
Hearn added to CADdys
28Feb08 Heather Orr
has updated her Story
12Feb08 Inge Andersen
added to Stories & CADdys
5Feb08 Lauren
Kenny added to CADdys
31Jan08 Tom Kiedrowski added to
CADdys
24Jan08 Laurie Riffle
updated her story regarding her experience with a supplement
17Jan08 Barb Johnson
added to CADdys
11Jan08 Shari Thomas added
to CADdys
Gloria Storey added to Stories
7Jan08
Cécile POIRRIER-GUILMIN added to Stories and CAddys
Rosie Sherman
added to CADdys
Gim Ho Thio added to CADdys
6Dec07 Changes
made to Links, Treatment Options, Cold Agglutinin Disease, Managing CAD,
and Rituximab
pages to bring them up to date with current knowledge.
20Nov07 Janice Frishkopf
added to Stories & CADdys
31Oct07 Eleanor Betz added to
Stories & CADdys
23Oct07 Two newly published articles on CAD by
Norway Researchers
Primary CAD -
an update .....by Sigbjørn Berentsen, Klaus Beiske, & Geir E,
Tjonnfjord
B
Lymphocytes as targets .....by Sigbjørn Berentsen, Elling Ulvestad,
& Geir E, Tjonnfjord
Go to the Links page to view these reports.
14Oct07 Rebekah Marshall
added to CADdys
14Sep07 Ann
Close added to Stories & CADdys
14Sep07 Donna
Catroppo added to CADdys
29Aug07 Nina Tartakoff added to Stories
& CADdys
15Aug07 Recent
Additions page added |